Foundations subscribe to receive aggregate, de-identified analytics from opted-in N1 Precision Insights users. No individual patient data — just population-level patterns.
HIPAA-eligible. De-identified by design. Built for foundations and advocacy organizations.
How It Works
Patients contribute voluntarily. You receive aggregate, de-identified data. Everyone benefits.
Your foundation or organization subscribes to the N1 Precision Registry to access aggregate, de-identified population data.
N1 Precision Insights users choose to contribute their de-identified data to the registry — participation is always voluntary and revocable.
Individual records are stripped of identifiers and aggregated into population-level datasets — no individual patient data is ever exposed.
Access population analytics, cohort discovery tools, and exportable research datasets through your Registry dashboard.
Platform Features
Tools designed for foundations, advocacy organizations, and research groups working at the population level.
Explore seizure frequency distributions, medication usage patterns, and demographic breakdowns across your entire registry population.
Define criteria to discover patients matching your research or program needs. Connect with opted-in participants for trials and studies.
All data is de-identified to Safe Harbor standards before aggregation. No individual patient records are ever accessible.
Export structured, de-identified datasets for your own research, grant applications, and publications.
Built on HIPAA-eligible infrastructure with a Business Associate Agreement executed for each subscribing organization.
Programmatic access to aggregate data via a secure API — integrate registry insights directly into your own research tools and pipelines.
Get Started
Contact us to learn more about subscribing to the N1 Precision Registry and accessing aggregate analytics for your foundation or research organization.
Contact UsN1 Precision Registry provides aggregate, de-identified analytics only. All data is de-identified to Safe Harbor standards. It is not a medical device, clinical decision support system, or FDA-regulated software. All outputs are observational summaries of aggregate logged data.